Katherine's Home from the Hospital

People are asking, so I better post to let you know that Katherine came home finally on Thursday.  We were originally told that she could come home Tuesday, which made me very nervous because I thought it seemed too soon although she was out of ICU on Monday even though they had no new room to move her to until Tuesday.  But we made all the arrangements to bring her home as we had been told.  In fact, they had even checked with the doctor to see if she could be out by noon to keep her 2 p.m. dental appointment. He said that was possible. When I got to the hospital early Tuesday, I learned that her newest INR reading showed her blood was too thin, so she would not get out after all.

I arrived at the hospital as early as possible Wednesday morning assuming she would be able to come home that day.  Someone unofficially told us her blood level was ok.  (Wrong. Actually it was still a wee bit high.) Her hospitalist doctor was off that day, and we waited for the substitute.  And waited. We were told he was on our floor before noon—but we never saw him if he was. Gerald was at home poised to drop everything and  go get her van as soon as we phoned him—the same as he had waited on Tuesday.  Finally late in afternoon, we gave up on being allowed to take Katherine home.  Actually I was not in any hurry, but she was. I felt she was safer in the hospital, but I felt sorry for her wanting to go home so would have welcomed that too.  At 6:15 that evening, I decided my day had been as long as I needed; and if the doctor came, Katherine could talk to him alone, which of course she did.

Again I arrived early on Thursday.  She was given the ok to go home, and we started gathering stuff and planning. It was amazing how much staff she had accumulated in a week’s time. Her dental appointment had been postponed until Thursday afternoon when we thought she was getting out on Wednesday.   Jeannie had texted that she would be down to help, and that took a big worry off my mind.  Gerald brought her home and drove her to the dentist in time for her appointment. I went to the drug store and filled two prescriptions, and called her aide that we were home.  The aide  came to help, and a friend brought a casserole.  I eventually went home to rest so I could come back with Gerald and Jeannie to help them get her in bed.  Jeannie spent the night.

The aide came Friday morning to get her out of the bed with the Hoyer, and when the aide went home, I came in.  Jeannie again came to help Gerald with the Hoyer and to spend the night again making the necessary adjustment that Katherine's pain requires.  Jeannie had spent some of her daytime sleeping time shopping for what she hoped might be more comfortable night wear for Kathy. I have been home both nights by 11, and I can sleep late again in the morning as I have the last two days.  Jeannie will have to return to the northern part of the state tomorrow as soon as she rests up for the drive. I will miss her.

Tonight’s blog should let everyone know that as far as the blood clots are concerned, Katherine is doing well. The multiple sclerosis  really does not seem any worse because of them. Since the MS and the constant pain was bad enough before the clots, we are grateful symptoms have not increased. That is a good thing.

We try to get daily texts to Katherine’s siblings, but I really do not have time to do more than that.  So just know if I do not blog or do not phone, things are going as well as we can hope, but there is just not time for much communication.